Home for Good

More than a month baby Jane was at home with dear mom and dad. These last 2 weeks she s coughing. She s having medication for the cough but still there s some cough. Last Tuesday,last day of July, she was throw out some pleghm. Looks like she was having some trouble breathing. Luckily, dad was at home and Jane was admitted to the nearest hospital in Bandung. Doctor said that looks like Jane would not make it. She was unconscious and hardly breath. Around 5 pm, God took her to heaven.
It is been a difficult life for dear Jane but it was worthwhile. We enjoy every minutes with her at home. So sad but still we believe God works in all things for Jane's goodness and also for our goodness. Nothing is in vain. Tough her life seems so short. 6 months.. but her life touch our life and many people. That every minute is worthwhile. And each life no matter how short or how hard is meaningful. All of us owe God our life and every blessings we enjoy.

Home ! for the first time

Wedneday 27 June :
Jane is home !!! Jane is getting better and finally doctor release her from hospital. For the first time since born, she is home. Hooray ! What a miracle. Despite the low saturation ( around 60 - 70 ) she is allowed to discharged from hospital. We went back to Bandung, our beloved hometown.
Being in hospital for months , coming home is such a relieve yet a new chapter begin. Life seems to be more normal now, with family around, housework and  Jane at home. Feels so happy.

Thursday 28 June :
Extra busy with all the things ; taking care our precious baby and housework. Not to mention all unpacked things. Really seemed that we were moving out the whole things at home and now moving it back  :) About Jane: doctor here told us that they found  TR -somekind of leak in Jane's heart and they quite sad that the oxygen level (saturation )still below 80-90% after the surgery. They mention that this condition might give more risk to the next heart surgery.

We convey this to our cardiologist and wait for the opinion. We pray that God will let Jane achieve the expected saturation and continue to receive perfect healing.

Doctors told us to plan for the final heart surgery. Most likely it need to be done in Japan and we need to stay couple months for stem cell procedure after the surgery.
Right now we need to really  take care our little baby. She need to adapt here and need to be protected from any infection / other disease as she has not get proper vaccination.May God protect her always.

We also pray that Jane may soon catch up with normal baby weight and development. Praise God, on mid June, she reach 4,15kg weigh . Previously she was failure to thrive as she only weigh 3,6 kg but she will catch up. We believe so.

In gallery we put several new pictures of Jane while in hospital.Looking back on how bad the situation it was, this is such a miracle that Jane is home with us. Thank you Jesus!

Miracles on the way

Jane 's condition is getting better. She is been out of ICU since last week and we really hope she will be ready for the final heart surgery . The surgery will be done before she reached 2 years old. We believe miracles are keep coming. We have seen the miracles happened for Jane and we believe we 'll see more of it.

Maybe many of you have never seen Jane. We put this video so you may see our little precious Jane. May this become a blessings for all of us. As everyone face hard times and pains in this life.With Jesus, Jane can get through many of it in her life. Lean on Jesus, you will also has the strength to get through it.

You may watch another video at our friend blog : www.littlehelpforjane.blogspot.com

Fight against the germs

Jane- ICU - 12 May when she was desaturated.very low oxygen level

The check shown that the Pseudomonas aeroginosa , the previous bacteria was gone. Now we fight against MRSE. Couple days ago they had remove the HFO ventilator and change to the normal ventilator.Saturation is around 50. But totally now they found 3 bacteria . So, fighting is to be continued...

Saturation and all

Yesterday,Jane was desaturated to 29. Then increase again and reach 60.It is the number stating how many percentage oxygen inside her blood, out of 100 . Medically, Jane got serious infection.Lots of  phlegm coming out from her mouth.  Thrombocyte now is 11,000. She still stay in ICU.
 Only God can heal her. We surrender Jane's life to God for He is the only One who has the authority upon her life. Jesus God surely give Jane what is the best on His sight.

Saturation is getting better

Saturation now reach 40 - 50. Better now. They put support machine for her heart. Heartbeat number 130 - 150. New bacteria is found. They will give her new antibiotic drug to prevent infection. She will get aperesis transfusion again. She got fever this morning but now its gone. Body temp 36.5 Celcius. Thank God...

12 May 2012, 2.30 am

Jane's saturation rate is so low, 20 - 30 . Means the oxygen level is so low. Finally they decide to open her chest to give more space to the lungs. Considering to give a support machine.